Epidermolysis Bullosa

After Daughter's Death, Family Raises Money To Build A ChapelShe was only alive for eight months, but thanks to her parents' determination, her memory will live on. Three years ago Marc and Mandy Seymour set out to raise $500,000 to build the Quinn Seymour Chapel inside the University of Minnesota Masonic Children's Hospital.
Kylie's Kids: Meet AntonAnton is a charming 5-year-old spending about six months in Minnesota to receive a bone marrow transplant at Masonic Children's Hospital. He was born with a rare skin tissue disorder, epidermolysis bullosa. His whole family traveled from Texas to Minnesota to be with him during the treatment.
Procedure Pioneered In Minn. Helps Texas Boy With Rare Skin DisorderAnton Delgado has epidermolysis bullosa. It makes his skin so delicate, it easily blisters or even comes off. He recently had a bone marrow transplant at the University of Minnesota Children's Hospital to try to improve his health.
Boy Who Came To Minn. For Stem Cell Treatment DiesA young boy who came to Minnesota to get help with his rare disease has died.
Child With Rare Affliction Has Stem Cell TransplantThere are kids that live every day with unimaginable pain. It is a rare disease that tears their skin, just through touch.
Wis. Boy With Rare Disease Receives Stem CellsA 4-year-old Wisconsin boy with a rare skin disease has received a stem cell transplant in Minnesota.
Wis. Boy With Rare Disease Preps For Minn. SurgeryA 4-year-old Wisconsin boy born without the gene that binds skin together is heading to Minnesota to prepare for a stem-cell transplant that could save his life.